Evaluation of Reasons for Not Giving Donor Consent by Families of Patients With Brain Death: A Retrospective, Mixed-Method Study

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dc.contributor.authorGulsoy, Zuhal
dc.contributor.authorKol, Iclal Ozdemir
dc.contributor.authorYildirim, Gulay
dc.date.accessioned2024-10-26T18:05:44Z
dc.date.available2024-10-26T18:05:44Z
dc.date.issued2024
dc.departmentSivas Cumhuriyet Üniversitesi
dc.description.abstractObjectives: The number of patients with organ failure is increasing day by day; today, the numbers of organs and tissues for transplant remain inadequate. This study, which was carried out in a hospital of Sivas Cumhuriyet University in Turkey, aimed to determine reasons for not giving consent for organ donation after brain death and to clarify the familial causes listed among these reasons. Materials and Methods: This study was a retrospective, mixed -method study. Records of patients diagnosed with brain death and patient relatives who stated that they did not donate organs and who agreed to participate were included in the study. Results: Of 48 patients diagnosed with brain death, 39 (81.3%) did not donate organs. Reasons for not donating could be grouped under 5 themes: distrust (communication defects, frustration, anger, not meeting expectations), thoughts that the procedure would not provide benefits, fear (not accepting death, not understanding brain death, and experiencing loss), unwillingness to impair body integrity, and phobia of social reactions. Conclusions: We found that some patient relatives who were not against and even supported organ donation decided not to donate organs at the last minute. Reasons for not giving donation consent included distrust, anger, and frustration resulting from communication problems with health professionals, making the candidate donor feel valueless, previous bad experiences and prejudgments about the institution, and not providing the appropriate physical conditions related to the comfort of the patient relative during the process. It is important to keep in mind that the organ donation process begins with the patient's admission to the hospital; if managed correctly, the process can affect the decision of relatives in a positive way. Identifying and preventing potential obstacles that could affect decisions may increase donation rates. Health professionals with special training on this subject are needed for these situations.
dc.identifier.doi10.6002/ect.2021.0295
dc.identifier.endpage70
dc.identifier.issn1304-0855
dc.identifier.issn2146-8427
dc.identifier.issue1
dc.identifier.pmid34763631
dc.identifier.scopus2-s2.0-85184267491
dc.identifier.scopusqualityQ3
dc.identifier.startpage63
dc.identifier.urihttps://doi.org/10.6002/ect.2021.0295
dc.identifier.urihttps://hdl.handle.net/20.500.12418/29167
dc.identifier.volume22
dc.identifier.wosWOS:001204445400010
dc.identifier.wosqualityN/A
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherBaskent Univ
dc.relation.ispartofExperimental and Clinical Transplantation
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.subjectIntensive care
dc.subjectMixed-method study
dc.subjectOrgan donation
dc.subjectOrgan transplantation
dc.subjectPatient relatives
dc.titleEvaluation of Reasons for Not Giving Donor Consent by Families of Patients With Brain Death: A Retrospective, Mixed-Method Study
dc.typeArticle

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